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What Is Sickle Cell Anemia?

January 4, 2012 Sickle CellUncategorized

Sickle cell disease is an inherited disorder in which red blood cells (RBCs) are abnormally shaped. This abnormality can result in painful episodes, serious infections, chronic anemia, and damage to body organs.

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International Women’s Day (IWD)

March 9, 2012 Pass it onUncategorized

Supporting  ALL WOMEN.. Let's pass it on.

Tell us what you thought about this event.

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Sickle Cell Road Race Walk (Atlanta, GA)

March 10, 2012 Sickle CellUncategorized

Sickle Cell Road Race Walk (Atlanta, GA) - 2012
Kick off the spring race season with a championship road race!        Support Our Team

The 33rd Annual Sickle Cell Road Race is Georgia's 7K championship, certified by RRCA. Run the challenging 4.3 mile course or walk the 4K course (2.5 miles) through South Fulton's scenic neighborhoods.

All race proceeds support the mission of the Sickle Cell Foundation of Georgia and its programs to serve children afflicted with Sickle Cell Disease. All participants are encouraged to raise $100 or more to help support the Foundations programs.

Winners will receive prizes from RRCA or the race in an award ceremony. All registered run and walk participants will receive a t-shirt. Plus, a fun filled post race party will follow with food and music.

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Participate in 2012 Relay For Life Events & Make a Difference Today.

March 12, 2012 Pass it onUncategorized

Participate in 2012 Relay For Life Events & Make a Difference Today.

What Is Relay?

Overnight relay-style event
Teams of people camp out around a track
Members of each team take turns walking around the track for the duration of the event
Food, games and activities provide entertainment and fundraising opportunities
Family-friendly environment for the entire community

Because it’s a Relay, you’re not required to be there the entire time…but it’s so fun, you’ll probably find it hard to leave!

Sign up for Relay by finding an event in your area >>

Learn About Relay

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September is Sickle Cell Disease Awareness Month

September 24, 2012 Pass it onSickle CellUncategorized

National Sickle Cell Diease Awareness

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Press Release

September 25, 2012 Pass it onPress ReleasesSickle Cell

National Sickle Cell Diease AwarenessSchumer-Talent Sickle Cell Disease Bill Passes Senate-House Conference

 

The US House-Senate Conference Committee today passed US Senators Chuck Schumer’s and Jim Talent's Sickle Cell Treatment Act (S. 874) to help treat and expand services for patients with the blood disorder that primarily affects African-Americans. The legislation passed as part of an amendment to the JOBS Act, FSC/ETI (S. 1637), which was originally approved by the Senate on May 11, 2004. The FSC/ETI Conference Report with Senator Talent and Schumer’s legislation must now be approved by the House and Senate before being signed into law by the President.

"While we have known about the dangers of Sickle Cell Disease among African Americans for a long time, new immigration trends in New

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Three Precautions for Athletes With Sickle Cell Anemia

September 25, 2012 Pass it onPress Releases

Red blood cells, multiple sickle cellsThree Precautions for Athletes Suffering from Sickle Cell Anemia

Sickle cell disease is a genetic blood disorder that can create a whole host of medical complications, and can shorten life expectancy. Although sickle cell anemia can be serious, it does not mean that someone has to give up sports. There are a lot of athletes out there that participate in sports with the condition, but they have to take certain precautions to stay healthy.


Here are three precautions that every athlete must take in order to stay healthy, if he or she is suffering from sickle cell anemia.


Gradually Increase Intensity


An athlete

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Help Sign This Petition

September 26, 2012 Pass it onSickle CellUncategorized

sign_petitionStop - misunderstanding and mismanagement of Sickle Cell Disease
Help Multiply this impact on Sickle Cell Anemia Disease
Turn your signature into dozens more by sharing this petition and recruiting people you know to sign.

 
This petition will be delivered to:

American Medical Association CEO
Jenny Rosenberg Office of the Assistant Secretary for Health/Surgeon General
Roberta Baskin Office of Inspector General (OIG)

Office for Civil Rights (OCR) Rachel Seeger
Dominique Friend SCD Advocate
Kathleen Sebelius Secretary of Health and Human Services

Howard Kyongju Koh United States Assistant for Secretary of Health
Kee' Doria L. Coleman Sickle Cell Advocate
Aisha A. Williams Sickle Cell Advocate

Robert Mills AMA
Anne Marie Benedicto Joint Commission

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N.C.A.A. Council Approves Testing for Sickle-Cell Trait

September 27, 2012 Pass it onPress Releases

By KATIE THOMAS

 

Members of the N.C.A.A.’s Division I Legislative Council have approved a measure that requires all athletes to be screened for the sickle-cell trait unless they can show results of a previous test or they sign a release to decline testing.

The measure, announced Tuesday after two days of meetings in Indianapolis, was intended to help prevent the sudden death of athletes who carry the trait, a genetic disorder that is present in about 8 percent of African-Americans and less than 1 percent of white Americans. People with the sickle-cell trait are believed to be at a higher risk for death brought on by intense exercise.

At least eight college football players who carried the trait have died as a result of intense training since 2000.

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Is sickle cell disease the same disorder as sickle cell anemia?

October 24, 2012 BlogPass it onSickle CellUncategorized  No comments


I found some more information check this out.

 
Sickle cell disease treatments:
An interview with Dr Niihara, CEO of Emmaus Medical

 
Please could you give a brief introduction to sickle cell disease?
Sickle cell disease is a devastating hereditary condition that affects millions of people, particularly those in West and Central Africa as well as people of African descent in the United States, Europe and South America. The disease involves normally round soft red blood cells being deformed into rigid and sickle shaped red blood cells. Sickle cell disease is marked by severe pain, life threatening infections and organ damage.
Is sickle cell disease the same disorder as sickle cell anemia?
There are several types of sickle cell disease. The most common are sickle

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Kellogg’s Company Recall Cereal

October 12, 2012 BlogPass it onUncategorized

vibe-kelloggs-cereal-recall-2012-mini-wheats

Kellogg's Company Issues $30M Cereal Recall
Posted October 12, 2012

 

 

This may be the one case where skipping on your Wheaties for breakfast is a good thing.
Cereal god Kellogg's issued a $30M recall after finding pieces of meshed metal in its Frosted Mini Wheats products. About 2.8 million boxes of Frosted Mini-Wheats, Bite-Size Original Mini-Wheats, and Frosted Bite-Size Mini-Wheats cereal are being yanked from shelves, the Wall Street Journal reports.

The company made the announcement through the FDA that a faulty manufacturing part is to blame for the recall. This isn't the first time Kellogg's caused a hot mess -- in 2010, a kink in equipment caused a packaging problem and its cereal to have a strange color and order.
Now check your

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Sickle Cell Trait- Exertional Sickling in Athletes

October 9, 2012 Pass it onUncategorized

 

 

I fond some great information out there on Exertional Sickling in Athletes.
from Florida State University College of Medicine


 

Athletes with Sickle Cell trait have special considerations before and during their workout. During intense exercise, these athletes are at risk for a possibly life threatening condition called "exertional sickling." The athlete's red blood cells change from a disc shape to a rigid, sickle shape and can become trapped in arteries leading to muscles, blocking oxygen from getting to muscle and tissue. Exertional Sickling is a serious condition that can cause pain, weakness, and fatigue, and can be live threatening. Rest, hydration, and high flow oxygen are used to treat and prevent an

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